A local family is advocating for the government to bring a miracle drug to Canada. 

Three-month-old Layla Bergen was born with Cystic Fibrosis. Submitted photo

Cystic Fibrosis Canada says Trikafta could help up to 90 percent of patients, calling it the single biggest advancement in treating the disease. Users say they see a marked improvement in their quality of life on the drug. Currently, the drug is available in the U.S but not Canada where it's estimated over 4,000 people live with Cystic Fibrosis.

Winkler residents Mikyla and Nic Bergen explain life has changed after learning their newborn daughter Layla has Cystic Fibrosis, a genetic disease that affects the lungs and digestive tract. Every morning they help Layla with chest physio to help break up mucous and give her medication to boost her digestive system. The diagnosis also means Layla will need to be protected from the flu and the common cold which can have much greater implications for people living with Cystic Fibrosis.

She notes they're hopeful a drug like Trikafta could make its way to Canada knowing it could change everything.

Portage-Lisgar MP Candice Bergen brought the issue to Prime Minister Justin Trudeau during question period last month.

"Can the Prime Minister tell families... when they can expect to have access to the life-saving drug Trikafta?" Bergen asked.

Trudeau explained they've put forward a rare disease high-cost drug strategy, "it's part of our commitment to make sure nobody ever has to pick between paying for rent or the medication they need."

While it still remains unclear when Trikafta may come to Canada, Mikyla says it's encouraging to know the voice of Cystic Fibrosis patients is growing louder and reaching the ears of the country's top lawmakers.

In more encouraging news, a woman in Ontario was recently approved by the drug's parent company, Vertex Pharmaceuticals, for compassionate care. As a result, she will have free access to the drug for life. The drug normally costs nearly $35,000 per month.